February 15th, 2006

Persephone, Asha, Hecate

Hello hello

Hey, all. I just joined today. I am 26 and even though I was diagnosed only a month ago, I apparently have had this all my life -- just that no one ever realized because I was a naturally spacy, creative kid. My parents and I were too busy dealing with my mild cerebral palsy.
In late 2001, I had my first grand mal seizure due to oxygen deprivation (breathed in too much marijuana smoke at a party). After my friends begged me to see a neurologist a few months later, I had an EEG and MRI, but they were both clean. I didn't like the doctor anyway, for wanting to medicate me right away before the testing. So, I let it go. Throughout the years I would have weird "episodes" that I couldn't explain. A few friends thought they might be seizures, but my thought was, "I don't have epilepsy. No, that's not it. It's just the cerebral palsy."
Finally, early last month, I had another grand mal (tonic-clonic) in front of my husband. He took me to my new doctor, who confirmed seizure and recommended me to a new neurologist, who gave me an EEG and got the MRI results from the previous neurologist. While the EEG was clean, the MRI showed something that no one had noticed before -- Periventricular Leukomalacia, on the right side of my brain, which is a brain injury in infants, especially severe preemies like me, that kills brain matter and leaves scarring. It caused the cerebral palsy in my left side -- and it also caused temporal lobe epilepsy. The doctor gave me a trial run of Trileptal at the smallest dose possible, since I weigh only 100 pounds. So here I am.
I wanted to cross-post something I had just written in the epileptics community:
Was it a complex partial?Collapse )
I appreciate your listening to my ramblings.
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