May 31st, 2008


Does anyone else here wish they could club doctors with bats?

So, I've been on Tegretol for about 3 years now? Something like that. The entire last year I have not had insurance, and trying to get any help- let alone my precious prescription- has been worse than trying to eat my own head. (Not that I would, although during siezure times I sure wish I could just to make it stop!) I realize the body builds a tolerance to the medication (damn body) and I am currenly up to 800mg a day, and still having seizures once a month. Considering I only weigh 115, this seems to be a lot, so upping the dosage would probably be out of the question. (Then again, I'm not an MD, what do I know, right?) Anyway, I recently called our state Epilepsy Foundation and was given a WONDERFUL information packet that explained more than any doctor ever has. I was told some people never quite become epilepsy-free, and that I may just be one of these lucky few. Great.

My questions are these:

1. Does anyone here have catamenial epilepsy? Can a hysterectomy resolve the seizure activity all-together, or is this just wishful thinking?

2. Can I receive disability for epilepsy? I'm sure I can, but does anyone think I will be approved for 1 day of activity every month? If I apply will they take away my driver's liscence right away?

Any and all help would be greatly appreciated. Hope everyone is feeling well!

(x-posted to epileptics)
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I have been having weird episodes with memory loss, ringing in my ears, problems with words, and strange smell/taste problems and headaches afterwards. I have had migraines, still do - more so with the episodes. The headache after the episode is in the base of my skull area.

The neuro does not really know if it is migraines or seizures, so I had my EEG at UVA yesterday.

Wow, the EEG really sucked. It was very disorientating and my head was splitting afterwards. I still feel icky today. The strobing lights really made my eyes twitch and I had trouble keeping them closed for the test. The strobe light created some very interesting patterns and hallucinations, though.

I really hate waiting for the results. They would not tell me a thing.