becki_lu_lu4 (becki_lu_lu4) wrote in t_lobe_epilepsy,

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Am I alone?

Am I the only one who wakes up in the morning struggling to move because the medicine I am on is making me so tiered? Does anyone else have tonic clonic seizures 1-2 times a month?

Recently I experienced having some partial fits, which were very scary. The only way I can describe them is that I was almost fully awake, but I had no control over my own body what so ever, It felt like my whole body was tensing up from head to toe. At times It would also feel like my face was being grabbed by something and it would feel as if it was shrivling up, smaller and smaller.
Eventually I came out of the seizure, but I then began to gag a lot which soon turned into a lot of throwing up.
My mum took me to the local GP, who then sent me into hospital, as these fits were not the kind I normally had. During my time at hospital, I had more Partial Seizures and more gagging, more orahs and all I could taste in my mouth was blood, from the mouth ulsers.

I am taking keppra (levetiracetam) twice a day 1000mg and zonisamide 200mg at night only.
I tend to experience a lot more tieredness than my friends, this is noticed by them being able to make it to 5am at parties and me only being able to make 3am. It has also been noticed by the amount of time I spend laying in in the mornings and taking naps.
I sometimes struggle to concentrate at college due to being too tiered and this has a massive impact on my education, and it always has. Throughout primary and secondry school.

Does anyone else experience worser fits when they have a temperature? As in the past, when I have had a really bad temperature, I have been known to have more than one fit during that time of being ill. Sometimes 7 in one day.

It would be amazing to hear from anyone, who is going through some of or all of what I am going through. Because I have met so many other epileptics, but none of them seem to have the same type to me. Am I just the only one?
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